AutismWhat happens during an autism assessment
How to get an assessment
You need to be referred for an assessment by someone like a GP or special educational needs (SENCO) staff at your child's school.
You may have to wait a few months to get an appointment.
What you can do while you wait for an assessment
If you think you or your child need support at school, home or at work, you can start getting help before having an assessment.
- ask a GP if the assessment team can suggest any support groups
- find a local support group using the National Autistic Society services directory
- talk to teachers or special educational needs (SENCO) staff at your child's school
- speak to student support services at college or university
- speak to your manager or human resources at work
- ask your local council for a needs assessment to see what support they can recommend
What happens during an autism assessment
You may have 1 or more appointments with a team of different professionals.
The asssessment team may:
- ask you about your child's development, such as when they started talking
- watch how you and your child interact, and how your child plays
- read any reports sent by the GP and the nursery or school
A member of the team may also visit your child's school to watch them in class and at break time.
The asssessment team may:
- ask you to fill in a questionnaire about yourself and any problems you have
- speak to someone who knew you as a child to find out about your childhood
- read any reports from the GP about other health problems you may have
Getting the result
When the assessment is finished, you'll be given a report saying what the team found.
You may be given it by the team or get it in the post.
The report will say:
- if you or your child are autistic – it might say something like you "meet the criteria for autism spectrum diagnosis"
- what you or your child might need help with – such as social interaction, communication, behaviours or sensitivity to lights, colours and sounds
- what you or your child are good at
Sometimes the report can be hard to understand as it can be full of terms used by healthcare professionals.
Ask the assessment team if you need any help.
Autism is a lifelong condition, so the report will be used throughout childhood and into adulthood.
If you do not agree with the result
When you get the report, you may:
- be told you or your child are not autistic
- be asked to wait until your child is a bit older to be assessed again, as the signs of autism may not be clear
- be given a diagnosis you do not agree with, such as a learning disability
Ask the assessment team why they have given the diagnosis they have.
If you still do not agree, you can:
- ask your GP to refer you to another team for a second opinion
- call the National Autistic Society helpline on 0808 800 4104 for advice – for example, about things like private assessments
Remember that a second opinion may say the same thing.
Page last reviewed: 18/04/2019
Next review due: 18/04/2022