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Intracranial hypertension

Intracranial hypertension (IH) is a build-up of pressure around the brain.

It can happen suddenly, for example, as the result of a severe head injury, stroke or brain abscess. This is known as acute IH.

It can also be a persistent, long-lasting problem, known as chronic IH. This is rare and sometimes it's not clear why it happens.

This page focuses on chronic IH.

Symptoms of chronic intracranial hypertension

Symptoms of chronic intracranial hypertension (IH) can include:

Chronic IH can sometimes result in permanent vision loss, although treatment can help to reduce the chances of this happening.

Causes of chronic intracranial hypertension

Possible causes of chronic intracranial hypertension (IH) include:

Rare causes include a blockage in the circulation of fluid at the bottom of the skull (Chiari malformation), inflammation of the blood vessels in the brain (vasculitis) and abnormal skull growth in children (craniosynostosis).

Idiopathic IH

In many cases, the cause of chronic IH is unclear. This is known as idiopathic IH, or sometimes benign IH.

It mainly affects women in their 20s and 30s, and has been associated with:

But these are only linked with idiopathic IH, they're not necessarily causes.

Tests for chronic intracranial hypertension

A GP may suspect you have intracranial hypertension (IH) if you have symptoms of increased pressure on your brain, such as vision problems and headaches.

You may have several different tests to diagnose IH, such as:

Idiopathic IH may be diagnosed if you have increased pressure on your brain and no other cause can be found.

Treatments for chronic intracranial hypertension

Treatment for intracranial hypertension (IH) depends on the cause, if this is known.

The main treatments for idiopathic IH are:

Surgery

Surgery may be considered if other treatments do not help.

The main types of surgery for chronic IH are:

These procedures can provide relief from your symptoms, but they also carry a risk of potentially serious complications. Talk to the surgeon about what your operation involves and what the risks are.

Outlook for chronic intracranial hypertension

Chronic intracranial hypertension (IH) can be life threatening if it remains undiagnosed and the causes are not treated. You should be referred to a specialist (neurologist) as soon as possible if a GP suspects it.

Outlook for idiopathic IH

Idiopathic IH is not usually life threatening, but can be a lifelong problem. While many people find their symptoms are relieved with treatment, but the symptoms can come back and can have a significant impact on your life.

There's also a risk that you could lose your vision, even though treatment can help reduce this risk.

Permanent vision loss is estimated to happen to 1 in every 5 to 20 people with idiopathic IH.

Find out more about living with IH at the IIH UK website.